https://wiki.stamen.health/index.php?action=history&feed=atom&title=AIDAVA_DocumentsAIDAVA Documents - Revision history2026-04-14T14:52:21ZRevision history for this page on the wikiMediaWiki 1.42.7https://wiki.stamen.health/index.php?title=AIDAVA_Documents&diff=128&oldid=prevAdmin 3julmthh: Added document summaries2026-04-13T18:45:17Z<p>Added document summaries</p>
<p><b>New page</b></p><div>__NOTOC__<br />
All available documents from the AIDAVA project, with summaries. Downloaded from [https://aidava.eu/results aidava.eu/results].<br />
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== Fact Sheet (PDF) ==<br />
[https://aidava.eu/results/AIDAVA_Factsheet.pdf Download PDF]<br />
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'''Key facts from official fact sheet:'''<br />
* Acronym: AIDAVA<br />
* Full title: AI powered Data Curation & Publishing Virtual Assistant<br />
* Programme: Horizon EUROPE / HORIZON-HLTH-2021-TOOL-06-03<br />
* Contract number: 101057062<br />
* Duration: 48 months (01/09/2022 - 31/08/2026)<br />
* Project funding: EUR 7,720,615<br />
* Coordinator: Universiteit Maastricht, Remzi Celebi — remzi.celebi@maastrichtuniversity.nl<br />
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'''Partner list from fact sheet:'''<br />
* Austria: Medizinische Universitaet Graz<br />
* Belgium: B!loba, European Cancer Patient Coalition, European Heart Network AISBL, Katholieke Universiteit Leuven, The European Institute for Innovation through Health Data<br />
* Bulgaria: Sirma AI EAD (note: listed as Sirma AI, which owns [[Ontotext]])<br />
* Estonia: Sihtasutus Phoja-Eesti Regionaalhaigla<br />
* Germany: Averbis, EURICE<br />
* Netherlands: Universiteit Maastricht<br />
* Romania: Egnosis SRL<br />
* Spain: Data for Patients<br />
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''Note: Bulgaria partner listed as "Sirma AI EAD" in the fact sheet — Sirma AI is the parent company of [[Ontotext]].''<br />
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== Project Overview (PDF) ==<br />
[https://aidava.eu/results/AIDAVA_Overview.pdf Download PDF]<br />
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'''Architecture:'''<br />
* '''Backend (Automation):''' Orchestration of different technologies to maximize automation in cleaning personal health data<br />
* '''Frontend:''' User involvement — dialogue with user, tailored to individual skills, with explanations<br />
* '''Output:''' Curated Data IDENTIFIED (Personal Health Record) + Curated Data ANONYMIZED (Population Patient Registries)<br />
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This dual output — identified personal records for the patient AND anonymized population registries for researchers — is central to the "curate once, reuse many times" vision.<br />
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== Periodic Flash — November 2022 ==<br />
[https://aidava.eu/results/AIDAVA_periodic-flash_Nov22.pdf Download PDF]<br />
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'''Project kick-off, October 2022 in Maastricht.'''<br />
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'''Two use cases defined:'''<br />
# '''EU Breast cancer registry maintenance''' across 3 university hospitals in the consortium<br />
# '''Cardiac patients personal longitudinal record''' to identify risk of cardiac failure<br />
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'''Two paradigm shifts:'''<br />
# Patients are in control of their data through a "data intermediary" (defined in EU Data Governance Act)<br />
# Patients are supported by an intelligent virtual assistant<br />
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Patients from EHN and ECPC onboarded November 25, 2022 to start developing requirements.<br />
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== Periodic Flash — March 2023 ==<br />
[https://aidava.eu/results/AIDAVA_PeriodicFlash_March2023.pdf Download PDF]<br />
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'''Patient requirements workshop completed, February 2023.'''<br />
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'''Patient incentives identified:'''<br />
* Main incentive: ensure treating physician has smooth access to complete medical record<br />
* Happy to share data "in a controlled way"<br />
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'''Patient requirements for data sharing:'''<br />
# Want to know who will access data and optionally obscure some information<br />
# Want easy consent mechanism for all parties<br />
# Want to know who uses data and for what purpose<br />
# Reward should be envisioned for commercial use of shared data<br />
# Concern about data donation — do they lose control?<br />
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'''Timeline:'''<br />
* First release of system: summer 2024<br />
* Second version: mid 2026<br />
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== Periodic Flash — September 2023 ==<br />
[https://aidava.eu/results/AIDAVA_PeriodicFlash_Sept2023.pdf Download PDF]<br />
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'''First year completed successfully.'''<br />
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'''8 Patient Consultants''' from ECPC and EHN participated in:<br />
* Online meetings, face-to-face workshop<br />
* Definition of use cases<br />
* Identification of personas and key features (health/digital literacy levels)<br />
* Specification of business requirements<br />
* Assessment of evaluation schedule and documentation<br />
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AIDAVA will continue working with Patient Consultants on evaluation and testing of preliminary prototypes before site patient testing in summer 2024.<br />
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== Periodic Flash — November 2024 ==<br />
[https://aidava.eu/results/AIDAVA_Periodic-Flash_November2024.pdf Download PDF]<br />
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'''G1 prototype tested May 2024. Evaluation from July 2024 in three countries.'''<br />
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'''Test sites:'''<br />
* North Estonian Medical Center (Estonia)<br />
* Graz University Medical Center (Austria)<br />
* Maastro Clinics, Maastricht University Medical Center (Netherlands)<br />
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'''Challenges:'''<br />
* Ethics approvals time-consuming<br />
* Finding patients interested in testing was difficult<br />
* Doctors on summer vacation delayed recruitment<br />
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'''Patient feedback on G1:'''<br />
# Usability on computer and phone was good<br />
# System questions not formulated appropriately<br />
# Some functionalities didn't work properly, others needed adding<br />
# Benefit was not evident for many patients — needs better explanation (e.g. value of IPS and clean data)<br />
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'''Next steps:'''<br />
* Enriching prototype with powerful AI solutions<br />
* Working with patient organisations to clarify benefits<br />
* G2 prototype testing planned for early 2026<br />
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== Periodic Flash — March 2025 (Latest) ==<br />
[https://aidava.eu/results/AIDAVA_Periodic-Flash_March2025.pdf Download PDF]<br />
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'''G1 evaluation report finalized January 2025. Big thank you to patients in Estonia, Austria, Netherlands.'''<br />
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'''Evaluation results:'''<br />
* 83 patients recruited; 70 completed<br />
* Overall performance of AIDAVA moderately acceptable by patients<br />
* Explanations are suboptimal<br />
* Approximately 45% of documents curated automatically<br />
* Average time to curate a document is too high (20 minutes)<br />
* Patient showed interest in AIDAVA-like systems mainly in countries without a central health data portal<br />
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'''What they're working on:'''<br />
# In-depth analysis of users' feedback and improvements including features that improve benefits for patients<br />
# Validation of business requirements, identification of ones met, prioritization of ones to implement<br />
# Development and testing of prioritized requirements<br />
# Amendment to study protocol and Ethics Committee Approval<br />
# External communication on results<br />
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'''Timeline:'''<br />
* G2 delivery: end 2025<br />
* G2 testing: early 2026<br />
* Project end: August 2026<br />
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== Key Insights from Documents ==<br />
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'''What works:'''<br />
* Usability of the system is good (computer and phone)<br />
* Patients are interested in maintaining their health records<br />
* 45% automation rate is a solid baseline for a first prototype<br />
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'''What needs improvement:'''<br />
* Explanation system (why should I do this?)<br />
* Curation time (20 min/document is too slow)<br />
* Clearer benefits for patients (especially in countries with existing central portals)<br />
* Question formulation in the system<br />
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'''For competitive analysis:'''<br />
* The project is struggling with patient engagement and perceived value<br />
* 45% automation means 55% still requires manual work<br />
* 20 min/document is a significant bottleneck<br />
* Countries with existing health data portals (like Estonia) show less patient interest<br />
* G2 will add more AI but won't be tested until early 2026<br />
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== See Also ==<br />
* [[AIDAVA]]<br />
* [[AIDAVA Contacts]]<br />
* [[Knowledge Graphs in Health]]<br />
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[[Category:Project]]<br />
[[Category:EU]]</div>Admin 3julmthh