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=== 2. Health Data Intermediary Platform === '''What:''' Platform enabling patients to control, curate, and share their health data. Regulated under EU Data Governance Act. '''Who does this today:''' * [[MIDATA Cooperative]] β Swiss data cooperative, patient-owned health data * [[Egnosis]] β Romanian health data intermediary * MIDATA model: patients store data, consent to sharing, receive value * Solid Project (Tim Berners-Lee) β personal data pods '''Revenue model:''' * B2B: Hospitals pay for patient data access for research (anonymized) * B2B2C: Pharmaceutical companies pay for curated patient cohorts * Platform fees: % of data sharing transactions * Subscription: patients pay for data management '''Value:''' By 2030, EU citizens will control their data (EHDS vision). Intermediaries facilitate this. Market for consent management alone is growing rapidly.<ref>Nature (2025): "A user-driven consent platform for health data sharing in digital health applications" β https://www.nature.com</ref> '''Regulatory tailwind:''' EU Data Governance Act (2022), EHDS regulation (2024), EU AI Act β all require trustworthy data intermediaries.
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