Editing AIDAVA Documents

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All available documents from the AIDAVA project, with summaries. Downloaded from [https://aidava.eu/results aidava.eu/results].

== Fact Sheet (PDF) ==
[https://aidava.eu/results/AIDAVA_Factsheet.pdf Download PDF]

'''Key facts from official fact sheet:'''
* Acronym: AIDAVA
* Full title: AI powered Data Curation & Publishing Virtual Assistant
* Programme: Horizon EUROPE / HORIZON-HLTH-2021-TOOL-06-03
* Contract number: 101057062
* Duration: 48 months (01/09/2022 - 31/08/2026)
* Project funding: EUR 7,720,615
* Coordinator: Universiteit Maastricht, Remzi Celebi — remzi.celebi@maastrichtuniversity.nl

'''Partner list from fact sheet:'''
* Austria: Medizinische Universitaet Graz
* Belgium: B!loba, European Cancer Patient Coalition, European Heart Network AISBL, Katholieke Universiteit Leuven, The European Institute for Innovation through Health Data
* Bulgaria: Sirma AI EAD (note: listed as Sirma AI, which owns [[Ontotext]])
* Estonia: Sihtasutus Phoja-Eesti Regionaalhaigla
* Germany: Averbis, EURICE
* Netherlands: Universiteit Maastricht
* Romania: Egnosis SRL
* Spain: Data for Patients

''Note: Bulgaria partner listed as "Sirma AI EAD" in the fact sheet — Sirma AI is the parent company of [[Ontotext]].''

== Project Overview (PDF) ==
[https://aidava.eu/results/AIDAVA_Overview.pdf Download PDF]

'''Architecture:'''
* '''Backend (Automation):''' Orchestration of different technologies to maximize automation in cleaning personal health data
* '''Frontend:''' User involvement — dialogue with user, tailored to individual skills, with explanations
* '''Output:''' Curated Data IDENTIFIED (Personal Health Record) + Curated Data ANONYMIZED (Population Patient Registries)

This dual output — identified personal records for the patient AND anonymized population registries for researchers — is central to the "curate once, reuse many times" vision.

== Periodic Flash — November 2022 ==
[https://aidava.eu/results/AIDAVA_periodic-flash_Nov22.pdf Download PDF]

'''Project kick-off, October 2022 in Maastricht.'''

'''Two use cases defined:'''
# '''EU Breast cancer registry maintenance''' across 3 university hospitals in the consortium
# '''Cardiac patients personal longitudinal record''' to identify risk of cardiac failure

'''Two paradigm shifts:'''
# Patients are in control of their data through a "data intermediary" (defined in EU Data Governance Act)
# Patients are supported by an intelligent virtual assistant

Patients from EHN and ECPC onboarded November 25, 2022 to start developing requirements.

== Periodic Flash — March 2023 ==
[https://aidava.eu/results/AIDAVA_PeriodicFlash_March2023.pdf Download PDF]

'''Patient requirements workshop completed, February 2023.'''

'''Patient incentives identified:'''
* Main incentive: ensure treating physician has smooth access to complete medical record
* Happy to share data "in a controlled way"

'''Patient requirements for data sharing:'''
# Want to know who will access data and optionally obscure some information
# Want easy consent mechanism for all parties
# Want to know who uses data and for what purpose
# Reward should be envisioned for commercial use of shared data
# Concern about data donation — do they lose control?

'''Timeline:'''
* First release of system: summer 2024
* Second version: mid 2026

== Periodic Flash — September 2023 ==
[https://aidava.eu/results/AIDAVA_PeriodicFlash_Sept2023.pdf Download PDF]

'''First year completed successfully.'''

'''8 Patient Consultants''' from ECPC and EHN participated in:
* Online meetings, face-to-face workshop
* Definition of use cases
* Identification of personas and key features (health/digital literacy levels)
* Specification of business requirements
* Assessment of evaluation schedule and documentation

AIDAVA will continue working with Patient Consultants on evaluation and testing of preliminary prototypes before site patient testing in summer 2024.

== Periodic Flash — November 2024 ==
[https://aidava.eu/results/AIDAVA_Periodic-Flash_November2024.pdf Download PDF]

'''G1 prototype tested May 2024. Evaluation from July 2024 in three countries.'''

'''Test sites:'''
* North Estonian Medical Center (Estonia)
* Graz University Medical Center (Austria)
* Maastro Clinics, Maastricht University Medical Center (Netherlands)

'''Challenges:'''
* Ethics approvals time-consuming
* Finding patients interested in testing was difficult
* Doctors on summer vacation delayed recruitment

'''Patient feedback on G1:'''
# Usability on computer and phone was good
# System questions not formulated appropriately
# Some functionalities didn't work properly, others needed adding
# Benefit was not evident for many patients — needs better explanation (e.g. value of IPS and clean data)

'''Next steps:'''
* Enriching prototype with powerful AI solutions
* Working with patient organisations to clarify benefits
* G2 prototype testing planned for early 2026

== Periodic Flash — March 2025 (Latest) ==
[https://aidava.eu/results/AIDAVA_Periodic-Flash_March2025.pdf Download PDF]

'''G1 evaluation report finalized January 2025. Big thank you to patients in Estonia, Austria, Netherlands.'''

'''Evaluation results:'''
* 83 patients recruited; 70 completed
* Overall performance of AIDAVA moderately acceptable by patients
* Explanations are suboptimal
* Approximately 45% of documents curated automatically
* Average time to curate a document is too high (20 minutes)
* Patient showed interest in AIDAVA-like systems mainly in countries without a central health data portal

'''What they're working on:'''
# In-depth analysis of users' feedback and improvements including features that improve benefits for patients
# Validation of business requirements, identification of ones met, prioritization of ones to implement
# Development and testing of prioritized requirements
# Amendment to study protocol and Ethics Committee Approval
# External communication on results

'''Timeline:'''
* G2 delivery: end 2025
* G2 testing: early 2026
* Project end: August 2026

== Key Insights from Documents ==

'''What works:'''
* Usability of the system is good (computer and phone)
* Patients are interested in maintaining their health records
* 45% automation rate is a solid baseline for a first prototype

'''What needs improvement:'''
* Explanation system (why should I do this?)
* Curation time (20 min/document is too slow)
* Clearer benefits for patients (especially in countries with existing central portals)
* Question formulation in the system

'''For competitive analysis:'''
* The project is struggling with patient engagement and perceived value
* 45% automation means 55% still requires manual work
* 20 min/document is a significant bottleneck
* Countries with existing health data portals (like Estonia) show less patient interest
* G2 will add more AI but won't be tested until early 2026

== See Also ==
* [[AIDAVA]]
* [[AIDAVA Contacts]]
* [[Knowledge Graphs in Health]]

[[Category:Project]]
[[Category:EU]]